Friday, February 26, 2010

The Frustrations of Fibro Fog

I started exercising again and I’m drinking tons of water. I think part of my exercise is coming from the million trips to the restroom. I’m also going to church a lot more than I was. It helps even though it’s hard to get up, get dressed and get ready. By the time I get to church I’m so exhausted and by the time I get out I’m ready for a nap. It’s amazing how something so routine for a normal person is so hard to do for someone with Fibro. That’s just one of the many things that “normal” people don’t understand.

It’s so hard being around people when the Fibro Fog is really bad. I feel like they think I’m crazy when I can’t carry on a normal conversation, when my words get all jumbled up or I can’t even get the right words out in the first place. I had a conversation with someone at church and I told them about my difficulties with conversation and they said that I sounded okay. I didn’t think I did. I was so frustrated because I couldn’t get out what I wanted to say. I know what I want to say but it just doesn’t come out and if it does come out, it’s not the way I wanted to say it.

I wish the Fibro commercials would talk about the Fibro Fog too or the million other problems we are faced with every day. All they talk about is the pain. There’s so much more than that and I think people need to know. Maybe it would make it a little easier for people to understand what we go through. I don’t know that’s just my thought for the day.

I hope everyone is having a great day!

Tuesday, February 16, 2010

A Must Read for Anyone with an Invisible Chronic Illness

When you have a chronic illness you have to have a sense of humor or you're not going to make it. Laughing is so much better than crying when those bad days just keep on going and going. That's why I love But You Don't Look Sick. If you haven't checked it out, you need too. Here is one of my favorites from the site written by Amy-Beth Maran.
The top ten worst suggestions commonly given to someone with a chronic illness: 1)Have you tried holistic options? (many. I’ll bring it back up with my doctor on my next visit, thanks.) 2) Could it be your stress? (My opinion is, it is my illness. I’ll bring it up with my doctor though, thanks.) Read More...

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